I feel like I’m obligated to say something today. The thing is, this day is pushed by Autism Speaks, and I abhor that group. Since I have a sick kid (the Dudeling is puking up his guts today), I’m going to limit it to this to three links and a status update.
Here’s a link to a good flyer from the Autistic Self Advocacy Network: http://autisticadvocacy.org/wp-content/uploads/2012/05/Autism_Speaks_Flyer.pdf
And here are two links to Autistic Hoya:
http://www.autistichoya.com/2012/11/protesting-autism-speaks.html
http://www.autistichoya.com/2012/03/responding-to-autism-speaks.html
And here’s the status I posted on my Facebook profile:
It might seem like I’m unappreciative of the support being shown to autism today. That’s not it. I’m all about autism awareness. The thing is, too many people do not realize that Autism Speaks doesn’t let people with autism speak. They speak of the *poor, poor* parents of defective children, kids who need to be fixed. Or that autism needs to be eradicated. Their focus is on *ending* all forms of autism.
Do I want more forms of therapy and support for those with autism? Yes! But AS’s focus is on research to *end* it. Autism is challenging, but it is not *all* bad. Without the unique perspectives, the world would be a poorer place. Think about all the contributions from people like Albert Einstein. Many scientists, engineers, and other deep thinkers are on the spectrum.
Why don’t I like Autism Speaks? They speak for scared parents, not for autistic people. They don’t allow autistic people to speak for themselves. In fact, they demonize autism by spreading fear, enforcing stigmas, and by not having anyone on their board who is on the spectrum. I know of one Aspie involved in their organization, but he is not on the Board of Directors.
Well, I gotta get off the soapbox. My son is puking again. ::sigh::
Off-putting ending, but that’s the reality of being a mom.
All that said, think carefully and do your research before you donate to any charity.


